Many people with parkinsonism require care as the disease progresses with much provided unpaid by family and friends. Caring for someone can have a negative impact on physical and psychosocial wellbeing. Caregiver burden can impact ability to continue this role, which can precipitate hospitalisation or institutionalisation of the recipient. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Equality and diversity is an overlooked yet critical aspect of PPI. Discrimination and inequality compound the power imbalance that exists in involvement. If this is appropriately attended to at systemic and organisational levels, there is an opportunity to genuinely involve patients in research and strategic decision-making in an empowered and mutually beneficial way that simultaneously challenges structural inequality.
Rates of re-traumatisation among mental ill-health patients have risen significantly over the past decade and clinical guidelines place mental health nurses at the heart of their care. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Advanced planning of care and peer support are two of several approaches advocated by Mental Health Europe as a way to reduce coercive practice in mental health. In this study, Tinland and colleagues have demonstrated that including peer worker support in the development and sharing of advance directives compares favourably to leaving patients to do this on their own.
Reducing admissions is a laudable aim, and the evidence is that, overall, peer support did not achieve this in this high need population, but admissions is not the only important outcome.
Given the positive results from some other high quality RCTs, and importantly from qualitative work about the experiences of those providing and receiving peer support, and the quite specific circumstances in which the results of this study apply, peer support arguably still has much to offer.
this study confirms people with complex emotional needs (CEN) are not finding current community services useful or able to meet their needs. However, this study shows people with CEN can identify how services should be designed to care for them. Current and future services not only need to look into the evidence, but they also need to conduct service development research and consult with service user panels.
Mental Health Act Assessment (MHAA) is not experienced as person-centred. Although not explicitly set as a specific standard of the assessment process (DoH, 2018), the overarching principle is of empowerment, involvement, and increased personalised care (DoH, 2015).
The participants expressed difficulty in understanding the process and their options, lack of voice, and disempowerment.
Thus, this study supports that throughout the MHAA, information be delivered more effectively, repeated discussions on options be had, and emotional support be offered.
Losing a family member to suicide is a traumatic experience which includes guilt and self-stigma. Yet, there is lack of data synthesis on the survivors' experience.
The COVID-19 pandemic has induced a considerable amount of mental health difficulties, ranging from anxiety and depression to psychosis. As services struggle to cope with the demand for support, the effect of such psychological challenges on quality of life remains a major concern. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Family intervention (FI) is recommended in national guidance to be offered to all service users accessing an early intervention in psychosis (EIP) team, due to the consistent evidence base in reducing relapse and rehospitalisation rates. However, FI implementation is poor nationally. Although barriers have been identified at the level of staff member and the organisation, there is a paucity of research identifying service user perspectives. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.