To discuss the practical aspects of developing a PPI group, including one approach to convening a PPI group, and provide examples of where a PPI group has refined and improved the design of research. To read the full article, log in using your NHS OpenAthens details.
Knowledge sharing without borders. Have you ever been in the situation when you’re working in a group, where everything starts fine, but then mail starts to pile up, platforms multiply, and in the end, no one finds anything anymore? With this in mind, we designed Graasp. In Graasp, you create a space, add collaborators, share files and links in one place, and discuss with each other. Graasp is used not only in the educational context but also in humanitarian organizations such as Médecins Sans Frontières to help manage their knowledge on the field.
The Future of Learning. Delivered Today Continue A bold promise made a reality through: The Canopy: A social learning platform powered by AIA Nordic research-based social elearning platform designed to enable the development of competencies. The adaptive quizzes and the built-in social network str ...
Mental health lived experience narratives are first-person accounts of people with experience of mental health problems. They have been published in journals, books and online, and used in healthcare interventions and anti-stigma campaigns. There are concerns about their potential misuse. To read the full article, log in using your MPFT NHS OpenAthens details.
The authors provide examples of reflections on collecting data from a participatory research project that explored Gypsies, Roma and Travellers’ experiences of cancer in their communities. To read the full article, log in using your NHS OpenAthens details.
Mental healthcare services have undergone significant changes since the start of the coronavirus disease 2019 pandemic. In Leicestershire Partnership NHS Trust one such change has been the development of a community enhanced rehabilitation team, to support service users who had experienced quicker discharge from inpatient rehabilitation services due to pandemic-related measures with transition into the community.
Inpatient care often involves restrictive interventions such as seclusion and restraint and restrictive practices that limit the person’s freedom, rights, and daily activities. Restrictive practice has not been the explicit focus in previous research however, it often appears as an important theme, with participants identifying it can have a detrimental effect on their wellbeing. More research specifically on this topic in an inpatient setting is therefore needed. Women might be particularly vulnerable to adverse effects of restrictive practices compared to men as women generally occupy less powerful positions in society and more often experience abuse. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
How much of social work knowledge is based on the experiences and views of people who have experience of health and social care as service users and/or carers, rather than practitioners, managers or other professionals and/or experts? To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The purpose of this study was to describe mental health professionals’ experiences of changes in attitudes towards, and knowledge about, users of mental health-care recovery and decisional participation in clinical practice after an educational intervention.To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The purpose of this research is to develop an understanding of the experiences of staff working with PSWs in a community forensic team and the impact this has on them. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This paper describes the holistic experiences of a nurse faculty member living with serious mental illness and highlights lessons learned in both healthcare and academic settings.
In addition to insights from the experience, the paper also shares suggestions for moving forward, reducing burnout, and supporting employees in these fields. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The existing psychosocial Support activities in the Northern Territory, Australia, are mostly delivered through individualised outreach and client-centred Support programs and do not currently have a strong Peer focus. To address this gap, a Peer-Led Education Pilot was developed and implemented in Darwin, Australia. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This is an account of my experiences becoming unwell and accessing general and mental health services in Ireland. It traces this experience from initial contact with my general practitioner, to admission to a secure psychiatric ward where recovery slowly began. It is hoped that this lived narrative of my recovery will shed light on accessing mental health services from a dual lens; that of service user and social worker. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Family intervention (FI) is recommended in national guidance to be offered to all service users accessing an early intervention in psychosis (EIP) team, due to the consistent evidence base in reducing relapse and rehospitalisation rates. However, FI implementation is poor nationally. Although barriers have been identified at the level of staff member and the organisation, there is a paucity of research identifying service user perspectives. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The COVID-19 pandemic has induced a considerable amount of mental health difficulties, ranging from anxiety and depression to psychosis. As services struggle to cope with the demand for support, the effect of such psychological challenges on quality of life remains a major concern. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Losing a family member to suicide is a traumatic experience which includes guilt and self-stigma. Yet, there is lack of data synthesis on the survivors' experience.
Mental Health Act Assessment (MHAA) is not experienced as person-centred. Although not explicitly set as a specific standard of the assessment process (DoH, 2018), the overarching principle is of empowerment, involvement, and increased personalised care (DoH, 2015).
The participants expressed difficulty in understanding the process and their options, lack of voice, and disempowerment.
Thus, this study supports that throughout the MHAA, information be delivered more effectively, repeated discussions on options be had, and emotional support be offered.
this study confirms people with complex emotional needs (CEN) are not finding current community services useful or able to meet their needs. However, this study shows people with CEN can identify how services should be designed to care for them. Current and future services not only need to look into the evidence, but they also need to conduct service development research and consult with service user panels.
Reducing admissions is a laudable aim, and the evidence is that, overall, peer support did not achieve this in this high need population, but admissions is not the only important outcome.
Given the positive results from some other high quality RCTs, and importantly from qualitative work about the experiences of those providing and receiving peer support, and the quite specific circumstances in which the results of this study apply, peer support arguably still has much to offer.
Advanced planning of care and peer support are two of several approaches advocated by Mental Health Europe as a way to reduce coercive practice in mental health. In this study, Tinland and colleagues have demonstrated that including peer worker support in the development and sharing of advance directives compares favourably to leaving patients to do this on their own.
Rates of re-traumatisation among mental ill-health patients have risen significantly over the past decade and clinical guidelines place mental health nurses at the heart of their care. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Equality and diversity is an overlooked yet critical aspect of PPI. Discrimination and inequality compound the power imbalance that exists in involvement. If this is appropriately attended to at systemic and organisational levels, there is an opportunity to genuinely involve patients in research and strategic decision-making in an empowered and mutually beneficial way that simultaneously challenges structural inequality.
Many people with parkinsonism require care as the disease progresses with much provided unpaid by family and friends. Caring for someone can have a negative impact on physical and psychosocial wellbeing. Caregiver burden can impact ability to continue this role, which can precipitate hospitalisation or institutionalisation of the recipient. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This article demonstrates that co-production can be an effective framework to improve experiences for service users and healthcare staff. It is an empowering process that can happen in varying degrees and can be a key part of nurse managers’ practice. The article explores how co-production can be successfully used in a range of healthcare and higher education environments. Ideas about how nurse managers can use co-production to address diversity and inclusion in services are explored. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This study aims to understand the experiences of professional paid carers providing community support to people with intellectual disability “at risk of admission”. This study explores factors that were helpful or lacking in terms of the support the carers received from NHS health services during this time. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The study aimed to evaluate the efficacy, and explore carers' experience, of a brief carer focussed intervention in an Early Intervention in Psychosis (EIP) service using a mixed methods approach.
Early intervention for people diagnosed with bipolar disorder is a priority, but little is known about how recovery from first episode psychotic mania is experienced by this group. This study aimed to explore the experience of recovery from first episode psychotic mania for people diagnosed with bipolar disorder.
The therapeutic relationship is not always functional in clinical practice due to various factors, such as lack of time, lack of job motivation, exhaustion and rejection towards the person cared for.
There is a lack of research about experiences of family caregivers of service users in forensic mental health care (FMHC) and their involvement in care and treatment. Research shows that caregivers are burdened. Further knowledge is required, to provide a foundation for improving clinical practice.
While the mental health needs of populations are increasing, the targeted training of mental health professionals, specifically nurses, is required. Stigma surrounding mental health from nursing students exists, highlighting educational gaps. To address this, the involvement of consumers in undergraduate education has resulted in a positive effect on the stigmatising attitudes of nursing students. There is still a limited understanding, however, of the consumers experience in this process.
Commentary on: Anttila M, Lantta T, Hipp K, et al. Recovery-oriented mental health principles in psychiatric hospitals: How service users, family members and staff perceive the realisation of practices.
Implications for practice and research
Systematic efforts are needed for staff to recognise and address the barriers for personal recovery in psychiatric hospitals.
A larger focus on patient-reported and family-reported outcome measures is needed in the evaluation of recovery-oriented practices.
To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
People with mental health problems are often left behind, forgotten and excluded• Little is known or written from a service user perspective about experiences of psychiatry, mental health nursing, Mental Health Tribunals and alternative ap-proaches (such as counselling, peer support, psychological and recovery ap-proaches, cognitive behavioural therapy—CBT and creative/art/music/drama/horticultural/dance therapies)
Orla, a Bipolar UK peer support officer, shares her personal experiences and how nurses can help to destigmatise the condition. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Since the age of 14 I have had symptoms of bipolar, with alternating periods of depression and hypomania.