The government says it will ban all private transplants of organs from dead donors in the UK. The move comes after media reports of overseas patients paying to get onto the waiting list for organs donated by British people. An independent report said organs were scarce and no one should be able to pay for transplants, to ensure NHS patients did not miss out. Surgeons said it should reassure people organs went to those in most need.
Patients with rarer forms of cancer may have been denied potentially life-saving drugs due to a postcode lottery, campaigners said today. A study by the Rarer Cancers Forum found patients faced a postcode lottery when requesting drugs that had not been licensed for their condition, with many people being refused treatment.
A father is fighting a hospital's attempt to withdraw support keeping his baby son alive. The one-year-old, known as Baby RB for legal reasons, was born with a rare, genetic muscle condition that makes it hard for him to breathe independently. His parents are going to the High Court - the mother is reportedly supporting the hospital's bid. The father's lawyers argue that the boy's brain is unaffected, meaning he can see, hear, interact and play. Despite having to remain in hospital and being dependent on a ventilator to breathe, he enjoys having stories read to him and listening to music, they say. The lawyers are submitting video footage to the court, which they say shows him playing with his toys. But the hospital says that Baby RB's quality of life is so low that it would not be in his best interests to try to save him. Baby RB was born with congenital myasthenic syndrome and has been in hospital since birth.
A father whose son was born with a rare neuromuscular condition will go to the high court tomorrow in an attempt to stop a hospital withdrawing the support that keeps the child alive. Doctors treating the one-year-old say the boy's quality of life is so poor that it would not be in his best interests to save him. They are reportedly being supported in their action by the baby's mother, who is separated from his father. The child, known for legal reasons as Baby RB, was born with congenital myasthenic syndrome (CMS), a muscle condition that severely limits movement and the ability to breathe independently. He has been in hospital since birth. If the hospital succeeds in its application, it will be the first time a British court has gone against the wishes of a parent and ruled that life support can be discontinued or withdrawn from a child who does not have brain damage.
A one-year-old boy at the centre of a "right-to-life" legal dispute would not benefit from an operation to help him breathe, the High Court has been told. The child, known as Baby RB, has a rare, genetic condition that makes it hard for him to breathe independently. But a leading paediatrician, known as Dr F, said he was "not a candidate" for surgery to try to open up his airway. Baby RB's father is fighting a hospital's attempt - backed by the mother - to withdraw his life support.
A doctor has agreed a baby in a "right-to-life" legal row may be able to interact - but any mental development would only make his fate more tragic. The paediatric neurologist told the High Court the severely disabled child, Baby RB, would remain in a "no chance" situation even if he developed further. He questioned the life the boy would lead if he was capable of cognitive function but physically so disabled.
A doctor has said that a baby in a "right-to-life" legal row has the potential to communicate and even operate a wheelchair in years to come. The paediatric neurologist, Professor Fenella Kirkham, told the High Court that Baby RB had the normal intelligence of a one-year-old. She said he was likely to develop language recognition skills and he may be better off at home. The boy's father is fighting an attempt by the hospital to end life support.
A father who had been fighting to stop a hospital withdrawing life support from his seriously ill son has dropped his objections. The one-year-old, known as Baby RB for legal reasons, was born with a rare, genetic muscle condition that makes it hard for him to breathe independently. The hospital was backed by the baby's mother. But the move had been strongly opposed by the child's father at a High Court hearing. However, the father changed his mind after hearing medical evidence which suggested it would be in the best interests of the child if medical support was withdrawn. Lawyers for the health authority caring for the baby in intensive care told Mr Justice McFarlane: "All of the parties in court now agree that it would be in RB's best interests for the course suggested by the doctors to be followed."
A father who went to the High Court to try to stop a hospital turning off his seriously ill baby son's life support machine has dropped his objections to the move. The outcome has prompted a mixture of sadness and relief. For six days they had sat in the bland surroundings of Court 50 at London's High Court listening to others talking about their baby son's quality of life. A host of paediatricians, nurses, and experts went into the witness box. Many of them urged a judge to decide that this profoundly disabled 13-month-old boy should be allowed to die. It was, they said, no longer in his best interests to keep him alive.
Scientists have been able to reach into the mind of a brain-damaged man and communicate with his thoughts. The research, carried out in the UK and Belgium, involved a new brain scanning method. Awareness was detected in three other patients previously diagnosed as being in a vegetative state. The study in the New England Journal of Medicine shows that scans can detect signs of awareness in patients thought to be closed off from the world. Patients in a vegetative state are awake, not in a coma, but have no awareness because of severe brain damage. The scientists used functional magnetic resonance imaging (fMRI) which shows brain activity in real time.
Should those with incurable illnesses be allowed to choose how and when they die? In his Richard Dimbleby lecture, author Terry Pratchett, who has Alzheimer's disease, makes a plea for a common-sense solution. This is an edited extract of Terry Pratchett's Richard Dimbleby lecture, Shaking Hands With Death, which was broadcast on BBC1 on 1 February
TV presenter Ray Gosling has been arrested on suspicion of murder by Nottinghamshire Police after he admitted killing his lover. The 70-year-old's confession that he had smothered the unnamed man who was dying of Aids was broadcast on the BBC's Inside Out programme on Monday. The Nottingham filmmaker said he had made a pact with his lover to act if his suffering increased. Police are questioning the presenter over his claims.
NewsFilmOnline is a rich archive of some 60,000 news clips produced by ITN and Reuters in collaboration with the British Universities Film and Video Council. High quality clips of any story included in the NFO library can be downloaded by staff in subscribing Universities and Colleges as either Windows Media Video or Quicktime files. Many bioethics-related stories are represented within the NFO library but this resource is not being adequately exploited as many colleagues are unaware that it exists. The purpose of this additional Bioethics in NewsFilmOnline website, therefore, is to draw attention to and review particular clips within the NFO website.
Sports players and fans are being targeted in a campaign to get more sperm donors to help couples struggling to conceive. The National Gamete Donation Trust wants to increase the number of new donors in the UK to about 500, from its latest figure of 384.
GPs are considering whether to abandon their involvement in a scheme to put medical records on a computer database. BBC News understands that talks are continuing to try to make it easier for patients to opt out of the system. Thirty million people in England have already been formally contacted about the computer record. Health ministers from the coalition government insist the rollout will continue.
A new campaign by disability rights activists to limit the right to die launches at Westminster on Thursday. The campaign - called Not Dead Yet UK Resistance - will be asking MPs to sign a charter in support of its aims. It says that disabled and terminally ill people should enjoy the same legal protection as everyone else. Those in favour of assisted suicide argue that opposing assisted suicide will condemn terminally-ill people to suffer needlessly. The Not Dead Yet UK's charter includes a commitment to oppose any changes to existing laws which state that assisting a patient to commit suicide is illegal.
On my way back from an appointment at the hospital where I was being treated for a rare giant cell tumour in my left foot, my phone rang. It was my publisher saying that she'd found an image of a rather lovely pair of feet to go on the cover of my first novel. They were nothing at all to do with the book but, she thought, they somehow caught the spirit of it.
Ask a couple struggling to conceive what they would want most in life and "a child" is the obvious answer. They want something money can't buy, even with all the money in the world. For a couple needing egg or sperm donation this reality might change. Money could buy at least the chance of a child if donors were to be paid, if that's one of the outcomes of the Human Fertilisation and Embryology Authority (HFEA) donation review. Various issues are being reviewed in the HFEA public consultation, but payment of egg and sperm donors is high on the agenda.