All patients in England suffering from a disease which causes blindness are to get access to a sight-saving drug. Lucentis treats age-related macular degeneration, the leading cause of sight loss in the country.
A woman is suing her health trust after she was forced to conceive using a donated egg because of delays in her treatment. Greta Mason went into labour to give birth to a child conceived using a donor, her husband Chris said. Mrs Mason says she will bond with her baby regardless of the fact it was conceived using another woman's eggs. But she is suing Worthing and Southlands Primary Care Trust claiming unnecessary fertility tests led to a six-year wait for treatment, meaning her own eggs were too old to use.
A woman with multiple sclerosis has begun a High Court challenge to clarify the law on assisted suicide. Debbie Purdy, 45, from Bradford, is considering travelling to Switzerland - where assisted suicide is legal - to end her life. But she fears her husband, Omar Puente, could be prosecuted for going with her when he got back to the UK.
A widow is battling to use sperm taken from the body of her dead husband, in a British legal first. The woman, who cannot be named, wants to use sperm taken from her husband after he died unexpectedly during a routine hospital operation last year. The mother-of-one applied for an emergency court order allowing his sperm to be taken shortly after he died and it is now being stored in a clinic. The law allows sperm only to be used with the written consent of the donor.
BBC Radio 4's Law in Action will be broadcast on Friday 15 October, 2004 at 1600 GMT. Abortion law is under close scrutiny, after it was revealed that an NHS-funded charity is helping women to get illegal late abortions abroad.
The NHS drugs watchdog has loosened the terms of approval for expensive treatments that extend life in patients with a short life expectancy. Drugs that would normally be ruled out of use on the NHS because they did not represent a cost effective use of resources are now more likely to be made available.
The first British baby genetically-selected to be free of a breast cancer gene has been born. She grew from an embryo screened to ensure it did not contain the faulty BRCA 1 gene, which passes the risk of breast cancer down generations.
A leading British provider of abortions did not break the law when it told women who wanted late terminations about a clinic in Spain that would perform them, a report by Liam Donaldson, the chief medical officer for England, concluded last week. Professor Donaldson investigated the charity the British Pregnancy Advisory Service (BPAS) after a newspaper reported that it was illegally referring women to Spain for abortions after 24 weeks’ gestation, the limit in Britain for abortions for "social" reasons. Professor Donaldson has decided that BPAS did not break the law by telling women about the Spanish clinic. But he criticised it for giving out the clinic’s telephone number too readily and for not giving appropriate advice to women seeking a late abortion.
A woman with multiple sclerosis has lost her Appeal Court case to clarify the law on assisted suicide. Debbie Purdy, 45, from Bradford, is considering going to a Swiss clinic to end her life, but fears her husband may be charged on his return to the UK. She wanted clarification of where her husband, Omar Puente would stand legally if he helped her in any way. But Ms Purdy said after the ruling: "I feel that I have won my argument, despite having lost the appeal."
The NHS's spending watchdog acted unlawfully when it decided to restrict access to drugs that could help thousands of older women with the bone-thinning disease osteoporosis, the high court ruled today. A judge ruled that the National Institute for Health and Clinical Excellence (Nice) wrongly failed to disclose the economic reasoning behind a decision in October to restrict the supply of strontium ranelate, a drug manufactured by Servier laboratories under the brand name Protelos.
An Australian doctor stopped at Heathrow Airport when he arrived to hold workshops on euthanasia has been granted leave to stay in UK. Philip Nitschke was interviewed under the Immigration and Asylum Act after arriving from Australia on Saturday. Dr Nitschke plans to hold a workshop in Bournemouth, Dorset, on Tuesday to talk about assisted suicide.
Parliamentarians will make a new attempt next month to amend the law to give protection from prosecution to friends and family members who help a terminally ill person travel outside the United Kingdom for assisted suicide.
Genetic tests for which the results are likely to have a big impact on the person being tested should be provided to the public only within the framework of a consultation with a medical practitioner, recommend draft principles for direct to consumer genetic tests. The number of genetic tests available on the open market has increased in the past few years and will continue to grow as the technology develops. The Human Genetics Commission, the UK government’s advisory body on developments in human genetics, set up a working group with expertise in regulation, clinical, and molecular genetics and genetic counselling. The group includes representatives from the genetic testing industry and will develop a framework of "high level principles" to promote consistency in the provision of direct to consumer genetic tests at an international level.
Doctors should apologise and provide explanations to patients and their relatives when treatment goes wrong, according to guidance from the NHS Litigation Authority, the body which defends the NHS against legal claims for clinical negligence. The letter from (KCL MA MEL alumnus) Stephen Walker. the authority’s chief executive, replaces an earlier circular that warned NHS bodies to take care when providing explanations "so as to avoid future litigation risks."
A couple have spoken of their shock after an IVF clinic mix-up led to their last embryo being wrongly implanted into another patient. They were further angered when it emerged the other woman was given the morning-after pill. The couple from Bridgend won their case for damages after the mistake at Cardiff's University Hospital of Wales. Cardiff and Vale NHS Trust apologised "unreservedly" for the error and said it had improved checking procedures. The trust admitted gross failures in care and has also agreed to pay an undisclosed settlement to the couple.
A trainee teacher with primary refractory Hodgkin’s lymphoma has launched a High Court action against her primary care trust, NHS Surrey, which has refused to pay for her treatment with an unlicensed drug. Philippa Bigham, aged 28, from Frimley, Surrey, has been given a prognosis of two years’ survival without a bone marrow transplantation. But her medical team at the Royal Free Hospital in London want her to have treatment with radiolabelled basiliximab, a monoclonal antibody conjugated with radioactive iodine and also known as CHT-25, before she has the transplantation. The primary care trust has refused to pay for the drug, which costs £3000 ({euro}3500; $4900) for a course of treatment. Basiliximab is licensed in the United Kingdom for use in renal transplant rejection but the radiolabelled version is not yet licensed.
A mother of a prominent ME sufferer and campaigner has admitted aiding and abetting the suicide of her daughter. Bridget Kathleen Gilderdale, 54, of Stonegate, near Heathfield, Sussex, pleaded guilty to the charge at Lewes Crown Court. But she denied a charge of attempted murder and one of aiding and abetting attempted suicide.
Bridget Kathleen Gilderdale, 54, known as Kay, was arrested at her home in Stonegate, near Heathfield, East Sussex, following the death of her daughter Lynn, 31, who suffered from ME, on 4 December last year. She pleaded guilty to the charge during a brief hearing at Lewes Crown Court today, but denied a charge of attempted murder and one of aiding and abetting attempted suicide. She is alleged to have committed the offences against her daughter, who was struck down with ME at the age of 14, between 2 December and 5 December.
A "considered" and "objective" debate is needed on assisted suicide, the head of the Royal College of Nursing says. It comes after the RCN, which has 400,000 members, shifted its stance on the matter to be neutral.
The Royal College of Nursing (RCN) has dropped its opposition to the concept of helping patients to commit suicide. The college has now adopted a neutral stance, neither supporting nor opposing a change in the law.
A LESBIAN couple have won the right to IVF on the NHS after a legal tussle, ahead of laws that will put same-sex patients on an equal footing with heterosexuals. The couple, who remain anonymous, had to go through a legal fight to push the NHS to fund IVF because, at the moment, individual trusts decide whether they wish to pay for treatment for lesbians. The couple were initially refused IVF by their primary care trust because they were of the same sex. One of the women had polycystic ovarian syndrome, which disrupts ovulation, and is one of the most common causes of infertility. From October, clinics will no longer be able to block lesbians by referring to a child’s “need for a father”. Instead, same-sex couples will need to demonstrate only that they can offer “supportive parenting”.
It is three years since the Human Fertilisation and Embryology Authority reviewed its guidelines for sperm, egg and embryo donation in the appropriately acronymed SEED report. But reproductive medicine has moved on so swiftly that Professor Lisa Jardine, who took over last April as the authority’s chairman, believes that it is time to return to the issue. In an interview with The Times she called for a fresh debate on two of the most controversial aspects of donation. First on her agenda is the question of when family members should be allowed to donate to one another. She is concerned about intergenerational donation, such as in two cases in 2007. In one, a Briton aged 72 provided sperm to his daughter-in-law, while in the other a Canadian, Melanie Boivin, froze eggs for her daughter, Flavie, 7, who has Turner syndrome and will become infertile.
Campaigner Debbie Purdy has called for an "open debate" on assisted suicide laws after her landmark court victory. Prosecutors are to clarify the law after Law Lords backed Ms Purdy's call for formal advice on the legal position of those who help a loved one to die.
The government says it will ban all private transplants of organs from dead donors in the UK. The move comes after media reports of overseas patients paying to get onto the waiting list for organs donated by British people. An independent report said organs were scarce and no one should be able to pay for transplants, to ensure NHS patients did not miss out. Surgeons said it should reassure people organs went to those in most need.
Keir Starmer, the head of the Crown Prosecution Service, is to clarify whether people should be prosecuted for aiding a suicide following a landmark ruling by the Law Lords last week. It had been assumed that this guidance would affect only cases in which friends or relatives helped people to die abroad, such as at the Dignitas clinic in Zurich. However, in an interview with The Daily Telegraph, Mr Starmer said the “broad principles” of his new guidelines would apply equally to acts of assisted suicide planned and carried out at home.
A government source said: "Parliament is currently divided on this issue, but it may be that after Starmer produces his guidance, politicians will recognise that this is an ethical issue that cannot be left" to the Crown Prosecution Service alone.
More than 80% of NHS primary care trusts in England fail to offer the recommended three free cycles of IVF to infertile couples, an MP has claimed. The Department of Health says 30% of PCTs provide three cycles of the fertilisation treatment. But Tory MP Grant Shapps, who has contacted every PCT, says these figures are out of date. A "postcode lottery" operates, with rules on age, relationships and other children varying widely, he insists. In some cases women who would be deemed too old for treatment by one PCT would be seen as too young by another.
The director of public prosecutions (DPP) must spell out clearly his policy on prosecuting people in England and Wales who help friends or relatives go abroad for assisted suicide, the UK’s highest court has ruled. The unanimous judgment from five law lords is a victory for Debbie Purdy, who has primary progressive multiple sclerosis and wants her husband to help her travel to Switzerland—where assisted suicide is lawful—when she decides to die.
The government has announced a ban on patients paying for private transplant surgery using organs donated within the NHS. Ministers have accepted the recommendations of an independent report commissioned by the government after concerns that foreign patients were bypassing lengthy NHS waiting lists by paying up to £75 000 ({euro}90 000; $130 000) for a transplantation. Earlier this year it was revealed that the livers of 50 British NHS donors were transplanted into foreign patients over a two year period, with the bulk of the operations taking place in London at King’s College Hospital and the Royal Free Hospital.
But there is evidence that some clinicians may already be using continuous deep sedation (CDS), as a form of "slow euthanasia". Research suggests use of CDS in Britain is particularly high - accounting for about one in six of all deaths.
Lawyers seek clarification on role of UK doctors in assisted suicide: The UK Medical Protection Society says it will question MPs in the autumn on whether doctors may be prosecuted if they provide medical reports about a patient’s condition or fitness to travel knowing that this information will be passed to clinics such as Dignitas that help people end their life. They are also seeking clarification on whether doctors have a duty to report a patient’s intentions to the authorities.
Patients with rarer forms of cancer may have been denied potentially life-saving drugs due to a postcode lottery, campaigners said today. A study by the Rarer Cancers Forum found patients faced a postcode lottery when requesting drugs that had not been licensed for their condition, with many people being refused treatment.
Post-mortem examinations have been suspended at Wales' biggest hospital after inspectors found major problems. The Human Tissue Authority (HTA) highlighted problems in procedures, facilities and equipment at University Hospital of Wales (UHW) in Cardiff. The HTA said it did not take such action lightly, and Conservatives called it an "extreme step".
A distraught Newtownards father is today set to take his battle for a liver transplant for his severely ill son to the High Court. But while his legal team argue for a judicial review of a rule requiring alcoholics to be off drink for six months before being considered for a life-saving transplant, devoted dad Brian Anderson will travel to King’s Hospital in London to see his son Gareth.
Northern Ireland Health Minister Michael McGimpsey has said he cannot change organ transplant rules to allow Gareth Anderson to be added to the waiting list. Mr McGimpsey said guidelines state that he has to be alcohol free for six months before going on the organ list. “There are not enough livers to go around and the reason behind that guidance is that to be sure that precious gift isn't destroyed by alcohol immediately after, or soon after, the transplant occurs,” he said.
A couple have spoken of their utter devastation after a fertility clinic mix-up led to their last viable embryo being implanted into another woman. Debra and Paul, from Bridgend, have received damages of about £25,000 after the error in December 2007.
Fertilising eggs from the wrong sperm donor is a nightmare scenario for IVF clinics, which came to light in the case of a white woman in Leeds who found herself giving birth to black twins in 2002. But The Report's Nadene Ghouri has since found a routine neglect of safeguards to prevent such mix-ups at a major London hospital led one embryologist to turn whistle-blower.
The 2009 Equality Bill will, if enacted, make age based discrimination in the provision of health care and social care illegal for the first time in the United Kingdom. In a speech in 2008, the then health secretary, Alan Johnson, said, "Old age is the new middle age. Health and social care services need to adapt to the changing needs of today’s older people . . . to promote health in old age and help older people to maintain independence and quality of life."
A man serving a life sentence for a double murder has won a High Court victory over his right to have cosmetic surgery on the NHS. Denis Harland Roberts, 59, currently in a Co Durham jail for killing an elderly couple in East Sussex in 1989, wanted treatment to remove a birthmark. An undisclosed policy operated by Justice Secretary Jack Straw had restricted non-urgent inmate treatment. The case may mean other inmates are considered for similar treatments. However, the Prison Service said it was still "entitled to refuse escorts to hospital on grounds of risk". On Wednesday, London's High Court declared the justice secretary acted unlawfully and "contrary to good administration" in failing to disclose his full policy on medical appointments.
It is not just friends and family who want clarity about potential criminal prosecutions for helping someone travel abroad for an assisted suicide - doctors too may face criminal proceedings for offering advice or assistance under the current law. In this week's Scrubbing Up, the Medical Defence Union's Dr James Armstrong warns that doctors may be putting their livelihood and liberty on the line by becoming involved.
The refusal to move a pre-operative transsexual prisoner from a men's jail to a women's prison is a violation of her human rights, says the High Court. Deputy Judge David Elvin QC quashed Justice Secretary Jack Straw's decision to keep the 27-year-old, who cannot be identified, in a male prison.
People who stand to benefit financially from a person’s death are likely to be the ones prosecuted for assisting a suicide, under guidelines to be issued this week. The law will remain unchanged but new rules will detail the factors that are likely to lead to a prosecution, the Director of Public Prosecutions (DPP) said yesterday. Keir Starmer, QC, drew them up after the law lords backed Debbie Purdy, a multiple sclerosis sufferer who called for a policy statement on whether people who helped someone to kill themselves should be prosecuted. The policy, which will be issued on Wednesday, will aim to clarify when individuals are more likely to be prosecuted or more likely not to be, he said.
Guidelines on assisted suicide law will be published by the Director of Public Prosecutions this week to clarify when people are likely to be prosecuted. Keir Starmer QC told the BBC factors that would be considered included whether anyone helping in the suicide stood to gain financially. He said assisted suicide would remain an offence as the law was unchanged.