We aimed to describe 1) the burden and HRQL of informal caregivers of new patients attending a memory assessment service (MAS), 2) changes in these outcomes over two years and 3) satisfaction with services.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
The aim of this study was to enhance understanding about homecare workers providing care to people with dementia at end of life by exploring homecare workers' perceptions of challenges and the support they needed and sometimes received.. To read the full article, log in using your MPFT NHS OpenAthens details.
To explore current practice and the role taken by UK memory services in helping carers of people with dementia prepare for the end of life.. To read the full article, log in using your MPFT NHS OpenAthens details.
Anticipatory grief (AG) among caregivers of people with dementia is common and has been found to be related to negative health outcomes. Previous studies showed different patterns of AG between spousal and adult children caregivers of people with dementia (PWD) at different stages; however, the levels of such grief are not yet compared. The findings in Western studies are very limited, and inconsistencies have also been found in Asian studies. Open Access Article
Open access. Caregivers of persons with dementia (PWD) can experience loss and grief long before the death of the person. While such phenomenon of pre‐death grief (PDG) has been increasingly described, we are uncertain how it can be distinct from the well‐studied construct of caregiver burden.
Open access. The aim of this study was to describe relatives’ experiences of sharing a written life story about a close family member with dementia who has moved to residential care.
Open access. Medicines play a key role in the lives of people with dementia, primarily to manage symptoms. Managing medicines is complex for people with dementia and their family carers and can result in multiple problems leading to harm. We conducted a systematic review to identify and model medication issues experienced and coping strategies used by people with dementia and/or family carers.
The objectives of the study are (1) to test our primary hypothesis that carers using more dysfunctional coping strategies predict lower quality of life in care home residents living with dementia, and this is moderated by levels of resident agitation, and (2) to explore relationships between carer dysfunctional coping strategy use, agitation, quality of life, and resident survival.. To read the full article, log in using your MPFT NHS OpenAthens details.
Open access. The objective of this review is to critically examine, evaluate, and synthesize the literature on resilience in family caregiving for people with dementia.
Open access. Timely diagnosis of dementia is recommended in national strategies. To what extent is it occurring across Europe, what factors are associated with it, and what is the impact on carers emotions of quality of diagnostic disclosure?
DSDC run workshops for informal carers of people with dementia. This post shares notes from someone who went to a workshop and how her putting these ideas into practice made a difference to the person she cared for.
Open access. Dementia is a major global health and social care challenge, and family carers are a vital determinant of positive outcomes for people with dementia. This study's aim was to develop a conceptual framework for the Quality of Life (QOL) of family carers of people with dementia.
Open access. The aim of this review is to make a state of the art of the potential influence of neuropsychiatric symptoms (NPs) on caregiver stress and vice versa.
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For eight weeks, carers have been coming together at the Dementia Care Day Centre in Hexham to consider ways of dealing with the behaviours that some of their loved ones display.
Each week the programme covered a new theme, supporting the carers to explore and test out new interventions to deal with the behaviour and help when they are struggling with aspects of care.
To gain insight into professional and family caregivers’ attitudes towards involuntary treatment in community‐dwelling people with dementia (PwD).. To read the full article, log in using your MPFT NHS OpenAthens details.
While much is known about caregiving burden and its consequences on both caregivers and care recipients, reports on the sex and gender differences that may be present among family caregivers of persons with dementia (PWD) are lacking. Open Access Article
Journal of Family Psychology (Aug 2, 2018). DOI:10.1037/fam0000444
Significant others of people with dementia suffer high levels of burden and distress, creating the conditions for the negative attitudes and unhelpful responses described within the construct of Expressed Emotion (EE). It is not known however, whether EE then further enhances significant other burden and distress, and whether these processes operate early after symptoms of dementia have started. . Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Carer burden and carer stress are well-documented concepts, and can lead to depression and a risk of suicide in some individuals. It is important that this risk is considered when supporting informal carers of people living with dementia. To read the full article, log in using your MPFT NHS OpenAthens details. SSOTP (legacy account) - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.