This study aims to provide effect size estimates of the impact of two cognitive rehabilitation interventions provided to patients with mild cognitive impairment: computerized brain fitness exercise and memory support system on support partners' outcomes of depression, anxiety, quality of life, and partner burden. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
The carer-delivered individual cognitive stimulation therapy (iCST) was developed to improve cognition and quality of life of people with dementia. This study aims to explore people with dementia and family carers' concepts of mental stimulation and experiences of participating in the iCST intervention. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
CNWL’s Specialist Memory Service in Milton Keynes has made a moving film about carers and patients with dementia in the Borough.
This comes as statistics show that the number of people in Milton Keynes with dementia is increasing and expected to reach 3,250 by 2021.
The video, which can be seen below, shows interviews with carers about how invaluable CNWL’s Specialist Memory Service has been to them as they care for their loved ones.
We developed a tailor-made intervention aimed at improving social participation of people with cognitive problems and their caregivers. This programme consists of an integration of healthcare and welfare interventions: occupational therapy, physiotherapy and guidance by a welfare professional. This article describes the feasibility evaluation of this Social Fitness Programme. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
To investigate the effects on carer well-being of carer involvement in cognition-based interventions (CBIs) for people with dementia. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Informal caregivers are deeply involved in the case management process. However, little is known about the consequences of such programs for informal caregivers. This systematic literature review, reported according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses statement, addressed the consequences of clinical case management programs, whether positive or negative, for caregivers of frail older persons or persons with dementia. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Persons with dementia have described life in nursing home as difficult and lonely. Persons with dementia often reside in nursing homes for several years; therefore, knowledge is needed about how quality of life is affected in the nursing-home setting in order to be able to provide the best possible care. The aim of this study was to investigate the personal experience of living in a nursing home over time from the perspective of the person with dementia and to learn what makes life better or worse in the nursing home.
The aims of the study were to identify the clinical characteristics of three groups of caregivers: spouses, live-in adult–child or non-live-in adult–child, and their relation to the degree of perceived burden (Caregiver Burden Interview). Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
With cases of dementia on the rise, it's more important than ever that services give people the support they need. Read our briefing to find out what people have told local Healthwatch about their experiences of care.
The difficulty, stress and fatigue that can result from the role of caregiving is termed the “carer's burden” or “strain” by researchers. While caregiving can bring satisfaction and rewards, acknowledging the challenges of the role is important for supporting carers fully.
Journal of Psychotherapy Integration26.4 (Dec 2016): 353-365.
An approach to psychotherapy that integrates cognitive–behavioral, existential, experiential, and psychodynamic perspectives can help family members caring for an individual with dementia approach the challenges and stresses of caregiving in more effective, thoughtful, and connected ways. This article focuses on the process of helping caregivers differentiate challenges that require perseverance from goals that are unrealistic, face emotions evoked when limits are reached, and stumble toward acceptance and growth. The progressive nature of dementia presents caregivers with a constant barrage of new challenges, which demand that caregivers dynamically shift between (a) accessing grit and meaning making as fuel for perseverance and (b) recognizing their limits. To read the full article, log in using your NHS OpenAthens details.
The array of demanding tasks carried out by caregivers of people with dementia have significant negative impacts on their physical, mental and social well-being. Needs assessment allows individuals to indicate the extent to which their needs across different areas have or have not been met, allowing for estimations of the prevalence of needs and the extent to which help is required. This approach is extremely valuable in a clinical context, as it enables identification of the areas with which caregivers report a particular desire for help and allows targeting of support and resources to those who identify high levels of unmet needs. This systematic review aimed to critically examine the psychometric properties of measures that assess unmet needs of caregivers of people with dementia. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
The Department of Health has launched a national survey to hear first-hand if policies on improving dementia care and support are making a positive difference.
This toolkit is aimed at dementia groups and networks and provides guidance and helpful tips about facilitating discussions with people with dementia and carers effectively and sensitively.
To determine if providing informal care to a co-resident with dementia symptoms places an additional risk on the likelihood of poor mental health or mortality compared with co-resident non-caregivers. A quasi-experimental design of caregiving and non-caregiving co-residents of individuals with dementia symptoms provides a natural comparator for the additive effects of caregiving on top of living with an individual with dementia symptoms. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Accurate assessment of caregiver functioning is of great importance to gain better insight into daily caregiver functioning and to prevent high levels of burden. The experience sampling methodology (ESM) is an innovative approach to assess subjective experiences and behavior within daily life. In this study, the feasibility of the ESM in spousal caregivers of people with dementia was examined, and the usability of ESM data for clinical and scientific practice was demonstrated. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.