Leading learning disabilities research advocate Irene Tuffrey-Wijne uses her role to ‘shout about’ the need to involve service users in healthcare decisions that affect them
Irene Tuffrey-Wijne has made it her life’s mission to campaign on behalf of people with learning disabilities and autism when it comes to end of life care and bereavement. To read the full article, log in using your MPFT NHS OpenAthens details.
This is an important judgement as it further clarifies what is an acceptable care setting. The appearance of the proposed service did not match with the residential area it was located within and was too big - there was a supported living service on the same site. This did not promote integration with the local community.
A cross-sectional study examined data from the national census to explore links between learning disability and autism on mental health and poor general health. To read the full article, log in using your MPFT NHS OpenAthens details.
Book Review. A blend of personal and family experiences, and research evidence, this book focuses on girls and women on the autism spectrum, an area that has up to now been neglected. To read the full article, log in using your MPFT NHS OpenAthens details. To read a copy of the book in this review, please contact the library
he Chair of the UK Parliament’s Human Rights Committee, Harriet Harman MP, has written to the Chief Executive of NHS England, Simon Stevens, with questions about the roles and responsibilities of its Commissioners for St Andrews and Whorlton Hall, two institutions for people with learning disabilities and autism recently closed or put in special measures.
Intellectual disability (ID) is associated with polypharmacy particularly off‐label psychotropics for “challenging behaviour.” NHS England introduced the “stopping over medication of people with a learning disability (LD), autism or both” (STOMP) initiative. As ID services are a professionally diverse group, it is important to know whether teams have suitable knowledge to deliver STOMP. The impact of delivering bespoke STOMP training was evaluated.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
The Committee is undertaking an inquiry into the inappropriate placement of children and adults with learning disabilities and/or autism in mental health hospitals, and the threat that such placements pose to their human rights.
This report gives the interim findings from our review of the use of restrictive interventions in places that provide care for people with mental health problems, a learning disability and/or autism.
Soccer is the world's most popular sport. The present authors evaluated the effect of the Game of Life (GOL) soccer initiative on soccer skills, fitness and mobility of adults with intellectual disability (ID) and autism spectrum disorder (ASD).. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Anne Longfield, the Children’s Commissioner for England, is today publishing a new report, ‘Far less than they deserve: Children with learning disabilities or autism living in mental health hospitals’. The report shows how too many children are being admitted to secure hospitals unnecessarily – in some cases are spending months and years of their childhood in institutions when they should be in their community. It warns that the current system of support for those with learning disabilities or autism is letting down some of the most vulnerable children in the country.
The Care Quality Commission (CQC) is calling for an independent review of every person who is being held in segregation in mental health wards for children and young people and wards for people with a learning disability or autism. These reviews should examine the quality of care, the safeguards to protect the person and the plans for discharge.
The Chair of the UK Parliament Human Rights Committee, Harriet Harman MP writes to the Health Secretary Matt Hancock MP regarding abuse towards vulnerable adults at a hospital in County Durham.
Although parental stress is higher for children with neurodevelopmental disorders (NDs), it is unclear how this stress compares to more common NDs. The current study compared stress in parents of children with Williams syndrome (WS), Down syndrome (DS) and autism spectrum disorders (ASD). The impact of individual and contextual factors was also explored.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
To determine the level of evidence on the effectiveness of health coaching for parents of children with disabilities.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Several studies have investigated whether in utero exposure to selective serotonin reuptake inhibitors (SSRIs) is associated with increased risk of developing mental‐ or behavioral disorders. The aim of this study was to perform a systematic review and meta‐analysis based on this literature.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
The Learning Disability Employment Programme recently held two webinars which were facilitated by the National Development Team for Inclusion (NDTi) to help support NHS organisations to employ more people with a learning disability and/or autism. The webinars were recorded and are now available to watch anytime.