Open access. Medicines play a key role in the lives of people with dementia, primarily to manage symptoms. Managing medicines is complex for people with dementia and their family carers and can result in multiple problems leading to harm. We conducted a systematic review to identify and model medication issues experienced and coping strategies used by people with dementia and/or family carers.
Open access. The aim of this review is to make a state of the art of the potential influence of neuropsychiatric symptoms (NPs) on caregiver stress and vice versa.
Open access. Dementia is a major global health and social care challenge, and family carers are a vital determinant of positive outcomes for people with dementia. This study's aim was to develop a conceptual framework for the Quality of Life (QOL) of family carers of people with dementia.
Open access. The objective of this review is to critically examine, evaluate, and synthesize the literature on resilience in family caregiving for people with dementia.
Open access. Timely diagnosis of dementia is recommended in national strategies. To what extent is it occurring across Europe, what factors are associated with it, and what is the impact on carers emotions of quality of diagnostic disclosure?
We'd like to hear your suggestions for new book alert topics. Simply reply to this email with 'Book Alert Topic' and your suggestions. You can also view and sign-up to our current new book alerts here: http://library.sssft.nhs.uk/librarykeepuptodate
Open access. Most of patients with dementia are cared for by family members. Caring for people with dementia is challenging; approximately 30–55% of caregivers suffered from anxiety or depressive symptoms. A range of studies have shown that psychosocial interventions are effective and can improve caregivers’ quality of life, reduce their care burden, and ease their anxiety or depressive symptoms. However, information on the acceptability of these interventions, despite being crucial, is under-reported.
I was 8 years old when my father, Cecil Dawson, was diagnosed as having Alzheimer disease. Receiving a loved one’s diagnosis of a fatal degenerative disease is always traumatic; however, my mother and I were completely unprepared for what lay ahead of us.....Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
The American Journal of Occupational Therapy; Bethesda Vol. 71, Iss. 5, (Sep/Oct 2017): 1-10.
According to a 2014 Alzheimer's Association poll, stress, depression, burden, and decreased emotional well-being are the most frequently cited effects of dementia caregiving (Alzheimer's Association, 2015), most likely because caregivers of people with dementia spend a longer time, on average, in a caregiver role than do caregivers of people with other types of diagnoses (Alzheimer's Association, 2015). In this situation, both methods of providing information for the intervention and control groups were presented in the same manner, which allowed for a comparison of information rather than a comparison on which form of media was used. To read the full article, log in using your NHS OpenAthens details.
The American Journal of Occupational Therapy; Bethesda Vol. 71, Iss. 5, (Sep/Oct 2017): 1-10.
[...]a 2014 Alzheimer's Association telephone survey of 3,102 respondents revealed that the three primary reasons family members or other caregivers decided to provide care included wanting to keep the person with dementia (PWD) at home, living close to the PWD, and feeling obligated as a spouse or partner (Alzheimer's Association, 2016). [...]reference lists from articles included in the systematic reviews were examined for potential articles, and selected journals were hand searched to ensure that all appropriate articles were included. [...]insufficient evidence from 1 Level III study (Gitlin, Jacobs, & Earland, 2010) showed the translation of the Environmental Skill-building Program (ESP), now named Skills2Care®, into home-based clinical practice was moderately successful, with 70% adoption by occupational therapists and close to 60% of eligible caregivers participating in the program. [...]evaluating longer term effectiveness of interventions over a 1-yr or greater time frame is needed because most studies evaluate outcomes only immediately after the intervention is completed. To read the full article, log in using your NHS OpenAthens details.
This toolkit is aimed at dementia groups and networks and provides guidance and helpful tips about facilitating discussions with people with dementia and carers effectively and sensitively.
With cases of dementia on the rise, it's more important than ever that services give people the support they need. Read our briefing to find out what people have told local Healthwatch about their experiences of care.
This study aims to provide effect size estimates of the impact of two cognitive rehabilitation interventions provided to patients with mild cognitive impairment: computerized brain fitness exercise and memory support system on support partners' outcomes of depression, anxiety, quality of life, and partner burden. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Letter. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
We developed a tailor-made intervention aimed at improving social participation of people with cognitive problems and their caregivers. This programme consists of an integration of healthcare and welfare interventions: occupational therapy, physiotherapy and guidance by a welfare professional. This article describes the feasibility evaluation of this Social Fitness Programme. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Interventions addressing burden have limited impact among long‐term family caregivers. We examined whether problem solving therapy (PST) would reduce burden levels of caregivers of individuals diagnosed with mild cognitive impairment (MCI) or early‐stage dementia (AD).. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Quality of life is important especially in incurable illness. In dementia, we often need proxy reports of quality of life, but we know little about how individuals make their judgements. In care homes, proxies may be staff providing care or relatives, but staff rate quality of life differently to family. To our knowledge, no one has explored this qualitatively, so we used qualitative interviews to explore why staff and family think differently about quality of life.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Families, Systems, & Health (Jun 6, 2019). DOI:10.1037/fsh0000426
Introduction: Carers of persons with dementia (PWD) experience high levels of burden and distress and may use criticism in an attempt to change the behavior of PWD and thereby reduce their distress. We hypothesized that carer distress and criticism would each have an impact on the psychological well-being of the PWD and examined whether criticism mediates the association between carer distress and PWD psychological well-being.. To read the full article, log in using your NHS OpenAthens details.
We're currently making some changes in the background of our email updates to solve some problems we've been having recently. During our testing phase this may automatically generate some alerts, which will show below, but you can ignore these! If all goes according to plan we will be resuming normal service in the next week…