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Locast is an innovative platform for sharing and discovering location-based user-generated videos and production quality multimedia content provided by RAI TV. It consists of a combination of mobile and wearable computing elements supported by a distributed Web application. Content gathered from RAI TV’s historical archives and user-generated media are linked to physical locations in Venice in order to be accessible to all those visiting the space.
The project focuses on the uniqueness of the Italian cities’ heritage superimposing a layer that corresponds to the shared media-based memory of the recent Italian past: the RAI Archives. By taking advantage of the interactivity provided by new media, RAI offers a powerful feedback channel to users, which allows users to generate their own media, create their own stories and, finally, to participate in the media production process.
Locast offers to users the tools to build personalized itineraries, download the content in proximity of Points of Interests and watch them on their handsets in order to improve the overall tourist experience. Users can also perform a number of other actions such as contribute with new videos to Locast repository, follow recommended media itineraries, modify them and share experiences with their social network.
Locast explores location-based narrowcasting potential and actively engages the users to participate in the media production/consumption process together with a historical institution such as RAI TV. It shifts the innovation from the wide-spread concept of Web2.0 to the promising scenario of Space2.0 that keeps the physical and social qualities of the Italian cities and augment them with the potential offered by pervasive computing.
This document provides an in-depth look at the process used in trying to solve real issues with the User Experience of a social bookmarking application. While it might be easy to simply take the first solution that works and assume that it’s the best solution, the first solution is very rarely the best solution. We found several solutions to several problems, and many of them worked and appeared to be decent solutions. It was only upon further investigation and doing more detailed research that we found hidden flaws in some solutions, issues with user satisfaction in other solutions, and even found some solutions that broke entirely under certain conditions.
This paper will describe the problems we faced in detail and then provide an explanation of the solutions evaluated for each problem, including the benefits and drawbacks of each solution. We will also identify the final solution chosen and why it was chosen.
A talk given at WDCNZ 2011. Abstract:
We all know what “user experience” is and we know that it’s important. We analyze drop-off rates for sign-in flows, do A/B testing on color schemes, and organize user focus groups for new features. But we rarely talk about the “developer experience” - what we all go through each time we try to use a developer tool, library, or API. How do we decide what tool to use? Is it easy to integrate with our development environment? How flexible is the API? Where do we go when something goes wrong? Those are the sort of questions that we can ask to understand what it’s like for a developer to use a product - and where it can be improved.
Whether you simply use developer products or you actually build one yourself, you should walk away from this talk with ideas on how to make a great developer experience - and why it matters.
Wir wollen mithelfen, dass die Welt von morgen ein kleines bisschen benutzbarer wird. Dazu legen wir auf UXcite unsere Erfahrungen aus dem Bereich User Experience dar und hoffen darauf jede Menge Gleichgesinnte zum Austausch zu finden.
Carers have an intimate knowledge of the patient and can support and comfort them. But these carers also need support, comfort and recognition, and at Worcestershire Health and Care Trust Older Patient Inpatient Mental Health Service, we are working to make this happen.
CPA Service User Champions, who have been trained by Nottinghamshire Healthcare NHS Foundation Trust’s Care Programme Approach / Mental Health Act team as part of our CCA award-winning course, are now using the skills that they have gained to deliver training and information to clinicians via the innovative development of snappy video clips.
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A screening tool has been developed that will allow nurses to identify when unpaid carers are exhausted, feeling overwhelmed and in need of respite care or other support. To read the full article, log in using your NHS Athens
A new training pack has been launched today to help reduce the stigma and discrimination sometimes experienced by people when using mental health services.
NHS England has worked with Time To Change, England’s biggest programme to challenge mental health stigma and discrimination, to develop and fund a project which aims to better understand the dynamics of relationships between people who use services and NHS professionals. Insight from research, focus groups and individual interviews, demonstrated that a high number of people using mental health services felt they experienced stigma and discrimination.
This insight helped Time To Change to work with mental health professionals and service users to identify examples of good practice as well as the barriers which can sometimes stand in the way of positive interactions. The resulting training pack focuses on the positive changes which can improve both team culture and working practices.
Carl is a mental health campaigner who loves poetry. Here he blogs about how reading, writing or even performing can help your wellbeing, and gives his tips on how to get started...
We think that we need a new strategy for carers that sets out how more can be done to support them. It needs to reflect their lives now, their health and financial concerns, and give them the support they need to live well while caring for a family member or friend.
To help us develop the strategy, we want to hear from carers, those who have someone who care for them, business, social workers, NHS staff and other professionals that support carers.
Idea To create a carer’s passport that provides details of the main carer and gives them greater access to assist in providing care. The carer’s passport opens up hospital wards to carers of patients living with Alzheimer’s or one of the other forms of dementia and has been adopted successfully at other hospitals.
In the latest in a series of blogs about health care for ex-service personnel, wife Jane (not her real name) gives heartfelt insight into what it is like for the families of veterans scarred by what they have seen and been through
Melissa Bunting and Catharine Jenkins investigate the effect of caring among different cultural groups and recommend culturally congruent interventions to support carers. Login using your SSSFT NHS OpenAthens details for full text. SSOTP - request a copy of the article from the library http://bit.ly/1Xyazai
NHS England has today announced a £1.75m investment in an innovative family-based initiative to help more people to be cared for in a home, not a hospital.
The Shared Lives model will support people who have needs which make it hard for them to live on their own, by carefully matching them with a carer to share their family and lives, giving care and support in the community.
People using the scheme may have learning disabilities, dementia, mental health problems or other needs which require long or short term support. It will offer them the opportunity to either live with their matched and approved Shared Lives carer, or visit them regularly for day support or overnight breaks.
This HPOE guide, a collaboration with the American Society for Healthcare Engineering, explores ways hospital and health system leaders can use the physical environment to improve the patient experience.
Community Treatment Orders (CTOs) are often complex because of the ethical tensions created by an intervention that aims at promoting the patient’s good through an inherently coercive process. There is limited research that examines the complexity of CTOs and how patients on CTOs and workers administering CTOs make sense of their experiences.
A new systematic review published last week in BMJ Open by Eiring and colleagues aimed to investigate patients’ preferences for outcomes associated with psychoactive medications.
The ‘integrated approach’ provides a toolkit that clarifies the new duties on NHS organisations under the Care Act 2014 and the Children and Families Act 2014, provides a template Memorandum of Understanding (MOU) to support joined up working locally, and includes numerous examples of positive practice of work that have proven successful in supporting carers and their families.
he objective of the study was to describe use of services and self-care strategies by people experiencing suicidal thoughts. Login at top righthand side of page using your SSSFT NHS Athens for full text . SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
To understand issues around carer roles that affect carer involvement for people with intellectual disabilities in acute hospitals. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Since its birth about 30 years ago, Narrative Medicine approach has increased in popularity in the medical context as well as in other disciplines. This paper aims to review Narrative Medicine research studies on patients' and their caregivers' illness experience.
This review explores the concept of person-centred care, giving particular attention to its application in mental health and its relationship to recovery. It then outlines a framework for understanding the variety of approaches that have been used to operationalize person-centred care, focusing particularly on shared decision-making and self-directed care, two practices that have significant implications for mental health internationally. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Parental mental illness is often viewed from a risk perspective. Despite this, being a parent can be both valuable and motivating. Research literature lacks the perspective of mothers and fathers, who have experienced mental illness. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
The Triangle of Care celebrates a developing awareness of carers’ needs, and recognising that carer involvement can greatly improve patient outcomes. The guide outlines key elements to achieving this as well as examples of good practice.
Mental health trusts that have adopted the triangle of care have said that the uncomplicated framework has increased the focus on carers needs and has led to a more rounded approach to care.
Loneliness in older people is a public health concern in many Western countries. While not necessarily a symptom of mental disorder, it is often associated with depression and anxiety. Widowhood is a transition period during which many older people experience acute loneliness but over time develops strategies to manage it. Little is known about effective strategies that older people have used to manage the experience. The strategies older people used to manage this was the focus of this paper. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Psychiatric Rehabilitation Journal (Oct 13, 2016).
Objective: The study aimed to clarify the potential role and impact of behavioral health peer support providers on community hospital acute inpatient psychiatric units. To read the full article, log in using your NHS OpenAthens details.
The role of community pharmacists is changing globally with pharmacists engaging in more clinically-oriented roles, including in mental health care. Pharmacists’ interventions have been shown to improve mental health related outcomes but various barriers can limit pharmacists in their care of patients. We aimed to explore the experiences of people with lived experience of mental illness and addictions in community pharmacies to generate findings to inform practice improvements.
This toolkit is aimed at dementia groups and networks and provides guidance and helpful tips about facilitating discussions with people with dementia and carers effectively and sensitively.
The literature emphasizes that friendships are essential to youths’ successful transition to and adjustment in adulthood. Few studies have explored the friendships of transition‐aged youths with intellectual and developmental disabilities (IDD), and even fewer include youths’ own perspectives. This qualitative study explored the perspectives of transition‐aged youths with IDD regarding their own experiences of friendship.. To read the full article, log in using your NHS OpenAthens details.
The psychological status of caregivers of individuals with intellectual disability and psychiatric illness (PI) is important for effective management. The aim of this study was to examine the psychological status and its relationship with coping styles among these caregivers.. To read the full article, log in using your NHS OpenAthens details.
The NHS is today publishing guidance to help trusts work with bereaved families and carers.
Over 70 families and carers worked with NHS England on the guidance which will provide advice to hospitals, mental health and community trusts on how to involve families following the death of a loved one.
Mental health services in central Lancashire have worked with young people who have experience of mental health issues to hold a one-day conference on the transformation of services to improve the way that mental health care is provided to children, young people and their families.
Despite a positive and established perception of people with lived experience of mental distress contributing to the assessment of healthcare professionals, the consequence and implications for learning are predominantly unexplored.. To read the full article, log in using your MPFT NHS OpenAthens details. SSOTP (legacy account) - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
The Staffordshire Symphony of Hidden Voices is a series of events, activities and online places where hidden voices with perspectives on mental health care can find and engage with each other. It was created initially at the Combined NHS Staffordshire Symphony for Hidden Voices event at Port Vale Football Club on 30th June 2017
The purpose of this phenomenological study was to obtain caregivers’ perspectives on the impact of the sensory environment on participation in daily activities of their young children with autism spectrum disorders (ASD). SSSFT staff - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Systemic approaches can be useful in working with people with learning disabilities and their network. The evidence base for these approaches within the field of learning disabilities, however, is currently limited.
This article presents part of a service evaluation of systemic consultations in a Community Learning Disability Service (CLDS). Login using your SSSFT NHS OpenAthens details for full text.
I was 8 years old when my father, Cecil Dawson, was diagnosed as having Alzheimer disease. Receiving a loved one’s diagnosis of a fatal degenerative disease is always traumatic; however, my mother and I were completely unprepared for what lay ahead of us.....Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Non-adherence is a major public health problem despite treatment advances. Poor drug adherence in patients with psychosis is associated with more frequent relapse, re-hospitalization, increased consumption of health services and poor outcomes on a variety of measures. Adherence rate in patients with first episode psychosis have been found to vary from 40 to 60%. However, most previous studies have addressed the consequences of non-adherence rather than its potential causes.
The purpose of this study was, therefore, to investigate experiential factors which may affect adherence to medication in adults with psychotic disorders, during the 24-month period after the onset of treatment.
Carers from across Staffordshire have been recognised for “going the extra mile” at the county’s Dignity in Care Awards.
Over 200 carers were joined by family members and work colleagues for the annual celebration held at Newcastle College of Performing Arts on 2nd August.
To examine the insights of carers to better understand self‐harm in their older relatives.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Despite these tremendous pressures this publication demonstrates current examples of how councils support adult and young carers locally in a range of different ways from respite breaks to discount cards to tailored information and advice.
Open access. Perspectives of young people with eating disorders and their parents on helpful aspects of care should be incorporated into evidence-based practice and service design, but data are limited. Aims: To explore patient and parent perspectives on positive and negative aspects of care for young people with eating disorders.
Open access. Most of patients with dementia are cared for by family members. Caring for people with dementia is challenging; approximately 30–55% of caregivers suffered from anxiety or depressive symptoms. A range of studies have shown that psychosocial interventions are effective and can improve caregivers’ quality of life, reduce their care burden, and ease their anxiety or depressive symptoms. However, information on the acceptability of these interventions, despite being crucial, is under-reported.
Ian Cummins looks at the experiences of people who have been subject to compulsory mental health legislation and admitted to hospital against their will.
To explore the experiences of intimate partners of people with an eating disorder.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Open access. Volunteers frequently participate in befriending schemes with people with mental illness. This study aimed to explore the motivations and experiences of volunteer befrienders in the UK engaging in these schemes in addition to the experiences of befriending recipients.
Interventions addressing burden have limited impact among long‐term family caregivers. We examined whether problem solving therapy (PST) would reduce burden levels of caregivers of individuals diagnosed with mild cognitive impairment (MCI) or early‐stage dementia (AD).. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Families, Systems, & Health (Jun 6, 2019). DOI:10.1037/fsh0000426
Introduction: Carers of persons with dementia (PWD) experience high levels of burden and distress and may use criticism in an attempt to change the behavior of PWD and thereby reduce their distress. We hypothesized that carer distress and criticism would each have an impact on the psychological well-being of the PWD and examined whether criticism mediates the association between carer distress and PWD psychological well-being.. To read the full article, log in using your NHS OpenAthens details.
Previous research into improving patient safety has emphasised the importance of responding to and learning from concerns raised by service users and carers. Expertise gained by the experiences of service users and their carers has also been seen as a potential resource to improve patient safety. We know little about the ease of raising concerns within mental health services, and the potential benefits of involving service users and carers in safety interventions. This study aimed to explore service user and carer perceptions of raising safety concerns, and service user, carer and health professional views on the potential for service user and carer involvement in safety interventions.
Expressed emotion (EE) is a global index of familial emotional climate, which is comprised of emotional over-involvement (EOI) and critical comments (CC)/hostility. Although EE is an established predictor of negative outcomes for both people with long-term mental health difficulties and their family carers, its psychological underpinnings remain relatively poorly understood. This paper examined associations between attachment, mentalisation ability and aspects of EE.
Alison Faulkner dissects the new McPin paper by Jasna Russo: Through the eyes of the observed: re-directing research on psychiatric drugs #PsychDrugDebate
To identify the methodological quality of each study and analyse the psychometric properties of instruments measuring quality and satisfaction with care from the perspective of mental health patients and professionals.. To read the full article, log in using your MPFT NHS OpenAthens details. SSOTP (legacy account) - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Danny Whiting on a Danish study that uses police data to measure the risk of crime victimisation, including violent crime, after onset of mental illness.
Open access. Medicines play a key role in the lives of people with dementia, primarily to manage symptoms. Managing medicines is complex for people with dementia and their family carers and can result in multiple problems leading to harm. We conducted a systematic review to identify and model medication issues experienced and coping strategies used by people with dementia and/or family carers.
Clinicians recommend including carers or others in a supporting role in the therapy as an important adaptation of psychological therapies for people with intellectual disabilities. This nested qualitative study from a larger trial explored supporters’ experiences of supporting people with intellectual disabilities receiving behavioural activation or guided self‐help therapies for depression.. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Coercion in mental healthcare has led to ethical debate on its nature and use. However, few studies have explicitly explored patients’ moral evaluations of coercion. Aim: The purpose of this study is to increase understanding of patients’ moral views and considerations regarding coercion. Group cognitive remediation therapy for adults with obesity
Open access. The aim of this review is to make a state of the art of the potential influence of neuropsychiatric symptoms (NPs) on caregiver stress and vice versa.
Open access. Dementia is a major global health and social care challenge, and family carers are a vital determinant of positive outcomes for people with dementia. This study's aim was to develop a conceptual framework for the Quality of Life (QOL) of family carers of people with dementia.
Open access. The objective of this review is to critically examine, evaluate, and synthesize the literature on resilience in family caregiving for people with dementia.
Open access. Timely diagnosis of dementia is recommended in national strategies. To what extent is it occurring across Europe, what factors are associated with it, and what is the impact on carers emotions of quality of diagnostic disclosure?
Quality of life is important especially in incurable illness. In dementia, we often need proxy reports of quality of life, but we know little about how individuals make their judgements. In care homes, proxies may be staff providing care or relatives, but staff rate quality of life differently to family. To our knowledge, no one has explored this qualitatively, so we used qualitative interviews to explore why staff and family think differently about quality of life.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
After hearing about the case from the safeguarding team, the trust’s nurse consultant for children and young people investigated what carer policies Whittington Health had, and discovered there wasn’t one for carers, whether child or adult. To read the full article, log in using your MPFT NHS OpenAthens details.
Open access. The literature suggests that many people in the general population tend to distance themselves from those with mental illness. However, there are volunteers that behave differently, spending their free time with people with mental illness and providing direct input in the form of befriending. Whilst there are a range of befriending programmes, little is known about who these volunteer befrienders are, and a previous review of different forms of volunteering in mental health care found data on only 63 befrienders.
It has taken more than 40 years for Lisa Rodrigues to talk about her mental health difficulties. She hopes her candour will help others who are struggling at the top. A year before she left her position as the chief executive of a mental health trust, Lisa Rodrigues wrote about her depression and anxiety, which began when she was 15 years old. ‘I’d been secretive about it,’ says Ms Rodrigues, who qualified as a nurse in 1977 at Great Ormond Street Hospital in London. ‘But I thought I’d kept it secret for long enough. It’s about destigmatising.’ To read the full article, log in using your MPFT NHS OpenAthens details.
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Shuichi Suetani and Sharon Lawn explore an article on psychosis physical health problems, which asks: Is it time to consider the views of family carers?
The subtle communicative behaviour of individuals with visual and severe/profound intellectual disabilities hinders the success of their interaction with professional caregivers. The bioresponse system, a tool to raise caregivers' awareness of the client's communicative behaviour, may improve the client's joint attention behaviour and the dyad's affective mutuality.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
This study examined mothers' representation of their children's inner world – maternal insightfulness – and its link to sensitive maternal behaviour. We aimed to understand some of the parental processes that underlie parenting children with intellectual disability (ID).. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Open access. Suicide bereavement is a risk factor for adverse outcomes related to grief, social functioning, mental health and suicidal behaviour. Consequently, suicide bereavement support (i.e., postvention) has been identified as an important suicide prevention strategy. However, little is known about its effectiveness. To redress this gap, this review aimed to assess the evidence of effectiveness of interventions for people bereaved by suicide, and appraise the quality of the research in this field.
Parents with intellectual disability live normal lives and have children, but many of them lose custody of their children. However, little is known about the support, if any, that these children receive. Here, the present authors review the literature on the help and support given to children of parents with intellectual disability.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
The Patient and Carer Experience (PaCE) Panel has been unveiled by The Shrewsbury and Telford Hospital NHS Trust (SaTH), which runs the Royal Shrewsbury Hospital and the Princess Royal Hospital in Telford.
The panel is made up of members of the public who volunteer their time to work collaboratively with staff members. The PaCE Panel will see the patient representatives and senior staff work together to improve quality standards across the Trust and to raise patient, carer and public voices.
Open access. Research is scarce on patient and parent satisfaction with family-based treatment for adolescent anorexia nervosa (AN), especially family-based treatment adapted to inpatient settings. The purpose of this study was to describe and compare patient and parent satisfaction with an inpatient family-based treatment program for adolescent AN, and to investigate whether the level of satisfaction with treatment was associated with eating disorder outcome.
Based on findings from Carers UK’s State of Caring
Survey 2016, this research explores the time it takes for
people to recognise they have taken on a caring role,
and whether they had missed out on support because
they simply didn’t think of themselves as a carer.
Those looking after older or disabled loved ones are missing out on vital support with consequences for their own health and finances: new Carers UK report.
The Care Quality Commission now involves ‘experts by experience’ – people who have first-hand experience of health and/or social care services – in its inspections, in training inspectors and in the broader shaping of the organisation. Utilising the 'renewable energy' of patient expertise was one of the central pillars of the NHS five year forward view (Forward View), now more than two years old.
Clinical guidelines for suicide prevention often stress the identification of risk and protective factors as well as the evaluation of suicidal intent. However, we know very little about what psychiatrists actually do when they make these assessments. The aim was to investigate psychiatrists’ own accounts of suicide assessment consultations, with a focus on their behaviors, attitudes and emotions.
International suicide prevention strategies recommend providing support to families bereaved by suicide. The study objectives were to measure the proportion of cases in which psychiatric professionals contact next of kin after a patient’s suicide and to investigate whether specific, potentially stigmatizing patient characteristics influence whether the family is contacted. : Login at top right hand side of page using your SSSFT NHS Athens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Self-harm in young people is a common reason for contact with clinical services. However, there is little research focusing on parents’ perspectives of care following self-harm. The aim of this study was to explore parents’ experiences of treatment and support for the young person and for themselves. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
With cases of dementia on the rise, it's more important than ever that services give people the support they need. Read our briefing to find out what people have told local Healthwatch about their experiences of care.
A diagnosis of childhood autism can be an extremely stressful experience for parents, but little is known concerning paternal perceptions of the process. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.