Open access. Medicines play a key role in the lives of people with dementia, primarily to manage symptoms. Managing medicines is complex for people with dementia and their family carers and can result in multiple problems leading to harm. We conducted a systematic review to identify and model medication issues experienced and coping strategies used by people with dementia and/or family carers.
Open access. The aim of this review is to make a state of the art of the potential influence of neuropsychiatric symptoms (NPs) on caregiver stress and vice versa.
Open access. The objective of this review is to critically examine, evaluate, and synthesize the literature on resilience in family caregiving for people with dementia.
Open access. Timely diagnosis of dementia is recommended in national strategies. To what extent is it occurring across Europe, what factors are associated with it, and what is the impact on carers emotions of quality of diagnostic disclosure?
Open access. Dementia is a major global health and social care challenge, and family carers are a vital determinant of positive outcomes for people with dementia. This study's aim was to develop a conceptual framework for the Quality of Life (QOL) of family carers of people with dementia.
Melissa Bunting and Catharine Jenkins investigate the effect of caring among different cultural groups and recommend culturally congruent interventions to support carers. Login using your SSSFT NHS OpenAthens details for full text. SSOTP - request a copy of the article from the library http://bit.ly/1Xyazai
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Carers have an intimate knowledge of the patient and can support and comfort them. But these carers also need support, comfort and recognition, and at Worcestershire Health and Care Trust Older Patient Inpatient Mental Health Service, we are working to make this happen.
Idea To create a carer’s passport that provides details of the main carer and gives them greater access to assist in providing care. The carer’s passport opens up hospital wards to carers of patients living with Alzheimer’s or one of the other forms of dementia and has been adopted successfully at other hospitals.
NHS England has today announced a £1.75m investment in an innovative family-based initiative to help more people to be cared for in a home, not a hospital.
The Shared Lives model will support people who have needs which make it hard for them to live on their own, by carefully matching them with a carer to share their family and lives, giving care and support in the community.
People using the scheme may have learning disabilities, dementia, mental health problems or other needs which require long or short term support. It will offer them the opportunity to either live with their matched and approved Shared Lives carer, or visit them regularly for day support or overnight breaks.
Open access. Most of patients with dementia are cared for by family members. Caring for people with dementia is challenging; approximately 30–55% of caregivers suffered from anxiety or depressive symptoms. A range of studies have shown that psychosocial interventions are effective and can improve caregivers’ quality of life, reduce their care burden, and ease their anxiety or depressive symptoms. However, information on the acceptability of these interventions, despite being crucial, is under-reported.
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Interventions addressing burden have limited impact among long‐term family caregivers. We examined whether problem solving therapy (PST) would reduce burden levels of caregivers of individuals diagnosed with mild cognitive impairment (MCI) or early‐stage dementia (AD).. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Quality of life is important especially in incurable illness. In dementia, we often need proxy reports of quality of life, but we know little about how individuals make their judgements. In care homes, proxies may be staff providing care or relatives, but staff rate quality of life differently to family. To our knowledge, no one has explored this qualitatively, so we used qualitative interviews to explore why staff and family think differently about quality of life.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Families, Systems, & Health (Jun 6, 2019). DOI:10.1037/fsh0000426
Introduction: Carers of persons with dementia (PWD) experience high levels of burden and distress and may use criticism in an attempt to change the behavior of PWD and thereby reduce their distress. We hypothesized that carer distress and criticism would each have an impact on the psychological well-being of the PWD and examined whether criticism mediates the association between carer distress and PWD psychological well-being.. To read the full article, log in using your NHS OpenAthens details.
This toolkit is aimed at dementia groups and networks and provides guidance and helpful tips about facilitating discussions with people with dementia and carers effectively and sensitively.